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Simpy simpy
 
waster, member since Mar 14, 2009
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clinical trial registration in the USA of the Stanford study of 30 patients. Not specific about outcome measures - what's the point of a clinical trials register without specific declarations of outcome measures? Looking forward to some dodgy subgroup analysis. Annotated link http://www.diigo.com/bookmark/http%3A%2F%2Fclinicaltrials.gov%2Fct2%2Fshow%2Fstudy%2FNCT00478465%3Fterm%3Dcfs%2Bme%2Bvalganciclovir%26rank%3D1%26show_desc%3DY
by waster 2009-08-18 13:52 me · cfs · cfsme · research
http://clinicaltrials.gov/ct2/show/study/NCT00478465?term=cfs me valganciclovir&rank=1&show_desc=Y - cached - mail it - history
solid, level-headed plea for more ME research funding, and plain English summaries of current hypotheses
by waster 2009-08-17 12:46 me · cfs · cfsme · research
http://www.meresearch.org.uk/information/publications/rsmtalk.html - cached - mail it - history
"Sir, The quarter of a million sufferers of myalgic encephalomyelitis (ME) in this country, who can access no effective NHS treatment for their physical illness, might agree with Mr Hannan in that they would not wish their NHS “care” on anybody. ME has been classified as a physical, neurological illness (alongside MS and Parkinson’s) by the World Health Organisation since 1969. Instead of receiving biomedical treatment, ME sufferers are mixed up with sufferers of other fatigue-causing conditions, including mental ones, under the meaningless umbrella term “chronic fatigue syndrome”. In the UK no other neurological illness is treated solely by psychological interventions. All UK taxpayers’ research and treatment millions have gone to the psychiatric profession that insist, against all scientific evidence, that it is an “abnormal illness belief”. No funding has ever been allotted to developing a diagnostic test. The parliamentary Gibson report recommended that these psychiatrists be investigated for a possible conflict of interest in also working for large insurance companies. This has never been done. Is healthcare here also, in President Obama’s words, “working better for the insurance companies” than for ME sufferers?" Annotated link http://www.diigo.com/bookmark/http%3A%2F%2Fwww.timesonline.co.uk%2Ftol%2Fcomment%2Fletters%2Farticle6798223.ece
by waster 2009-08-17 11:53 nhs · uk · cfsme · cfs · me · psychiatry
http://www.timesonline.co.uk/tol/comment/letters/article6798223.ece - cached - mail it - history
Clinical trial of anti-viral for group of CFS/ME patients.
by waster 2009-03-14 07:57 cfsme · research
http://www.vicd.info/clinicaltrial.html - cached - mail it - history
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